Tuesday, 26 March 2019

It's Purple Day-the international Day to raise awareness of Epilepsy

Hello my friends,

Today is 'Purple Day'-the international day for raising awareness for Epilepsy.

No....it was not me who chose purple-my fav colour-it really is the colour used for Epilepsy Awareness!.

Today we try to spread the word about this condition and make people more aware of it, dispel some of the myths that surround it and educate more people about it.

What better way to spend this day but to make a purple card. Plus the wonderfully creative Fikreta has organised a hop for us-we do have some prizes along the way but our main aim is to raise awareness.

Fikreta talks about some of the facts and myths on her blog post so I will just tell you my story but if you want to know more about Epilepsy-visit Epilepsy Society


Here is my purple card for today!



Me and My Epilepsy Journey

Please feel free to not read this and go straight to my giveaway on Instagram or the hop.

I suffer from Epilepsy which is caused by lesions on my brain called cavernomas. These lesions are hereditary and so a number of my Family also suffer.


 For 20 years medication kept my seizures mainly under control. But for the last 14 years the lesions have grown, bled and increased in numbers and now my seizures are not under control and I have been told are likely never to be. I suffer from at least 3 seizures a day. I no longer work, travel alone etc. It has effected my life so much, both physically and mentally and I have to work around the seizures and the medication side effects.


However I have a loving and caring husband and Family who are always there to support me.


Plus I have you all! Crafting is my escape and the support and love I get from you all means the world to me.


Running the challenge Time Out has also been such a support to me as I really don't craft that much so the administration needed to run this has kept my 'Management Brain' going and helps with my memory etc. The Design Team there are fabulous and so supportive-thank you all x


I would like to thank if you got to read this all!

And as another thank you I am also doing an Instagram giveaway for a $25 gift voucher for STAMPlorations.

Go over to my Instagram account here or click on the camera icon at the top right of my blog, to be for a chance to win!




And now time to hop with all these amazing designers:

Would love you to leave a comment here then hop along to these amazing designer's

Have a fun PURPLE DAY...if no time to make a card-have you got anything purple to wear???

Here is me in my purple for today!


Surrounded by all your crafty cards I have had sent to me in the last few weeks plus a bunch of flowers from my dear cousin Lynn and Joyce-both designers with me at Time Out Challenges-thank you all for your kindness....where would we be without this fabulous community of crafters-love you all xx

My card I used a flower image from Visible Image, stamped in my much loved Flirty Fucshia Catherine Pooler Ink and a sentiment from CAS-ual Fridays Stamps

I will enter this into:

AAA Card Challenge-one image and I take the option of 'Spring'
Day of the Month Card Club-I want you to be Happy!-well this card I hope will make someone happy but also it makes me happy to try to spread the word about epilepsy awareness

     Our logo to take away!  / Our logo to take away!





67 comments:

  1. Thank you for sharing your story Sandie! I am glad you have a lovely family and friends by your side. It is always easier when you have the support of your loved ones.
    We blog friends will be there cheering from far, but know that I always think of my blog friends.
    That's a lovely picture of you next to the lovely bunch of cards xx

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  2. I did not know this, Sandie. I am so sorry that your epilepsy has worsened over time. I am glad you have a supportive husband and family there for you. I learned a lot about epilepsy during this hop. Thank you for sharing what you are going through. You look cute in your purples and you have a lot of friends who love you! I like purple too - your CAS card is gorgeous!

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  3. You are truly inspiring Sandie and a real fighter. I am so happy to see your beautiful smiling face amidst all the cards.
    And you know I am just a mail away at all times.
    Sending hugs to you.
    By the way that's a gorgeous card.

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  4. Dear Sandie
    I am proud and Happy for you. Dont ever give up. I will be one of your supporters from today till i close my eyes.
    I loved your simple but elegant card and the colors too.
    I was an epilepsy patient too after marriage. It was a rare form and i used to fall all the time and injure myself. I never had seizures nor could i rememebrr that moment. During the time Apollo Hospital was in Sri Lanka I was fortunate to be on Treatment under Dr Deb an Indian National who was very kind hearted and loving. He prescribed me a drug called topomax after running many tests. After one week i was only skin and bone. But thankfully I recovered and now i dont get any attacks. Those days i was scared to go out alone but alas as I am a journalist i had to travel.
    I specially pray for you to have good health ASAP and please believe that miracles do happen. I will uphold you in my daily prayers and I am sure God will heal you. Lk after yourself and please be careful.
    Tc stay blessed always. Love and Hugs from Sri Lanka

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  5. Fab card as always Sandie and what a lovely photo of you ♥️

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  6. Hi Sandie, thank you for sharing your story and I am so sorry to hear that the medication no longer works as it did. To be honest I have never met anyone with epilepsy so this was an eye opener for me.
    As for your card... I love the richness of the purple, the lovely CAS design and the wonderful sentiment. Take care xx

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  7. I'm so glad you shared your story, Sandie. I had no idea that you suffered from epilepsy. I'm thankful that you have a supportive family and I know how this community of cardmakers can be your biggest shoulder to lean. Please know that you are in my prayers. Love and Hugs, Bobby

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  8. Great card. Wow, t least 3 seizures a day. That must be very tough. So good that you are surrounded by your understanding and loving husband and family! Take care.
    xxx Margreet

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  9. What a wonderful picture my beautiful, strong, brave friend. Sending much love your way. Your card is spot on for your cause. It's fabulously YOU.

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  10. Such a lovely card. I got to learn a lot about epilepsy in this hop, I have to admit that I had no knowledge about it before. Sorry to hear about the daily struggles you face. Glad to know that you have support of your friends and family. I love the comments you leave on my blog when I enter Time out challenges, they are so cheerful that they make my day.
    Have a great day.

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  11. hi
    your card is so very nice!
    thank you for joining me and frends in this blog hop!
    very nice photo of you.
    hugs

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  12. Your card is so beautiful spreading smile! Love that color combo and simplicity. I read your story and it broke my heart and then lifted me up - you are truly blessed dear and I am blessed to "know" you. Glad to hear that your family and friends are so supportive! May god bless you dear!
    Hugs!

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  13. Thank you Sandie for speaking your heart out! I got to know more about you and your will power to stand against all the struggles. You are such an inspiration to all and a very good cheerleader. Your comments on my blog as well as on my IG feed reveals how kind you are! I'm so glad that family and friends withstand by your side. We blog/social media friends are also there for you. Your cards is a masterpiece and perfectly captured the essence of encouragement. Beautiful you amongst beautiful cards and flowers! Take care Sandie! Prayers and Hugs!!

    Raga.

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  14. There's that splash of purple we've grown to love because of you, Sandie! You are such a positive part of our community, my friend - you face this condition head-on, and with such courage. Bless your sweet heart... xx
    =]
    Love and hugs...
    =]

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  15. Sandie you are so brave to share how epilepsy has changed your life! I am so sorry that you have to go through this and we need more research to be done to help wonderful people like you and maybe even find a way to prevent this in the future! I love your beautiful uplifting card! Thank you for bringing this to the world's attention!!

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  16. Wow, Sandie, you are AMAZING, friend! You're one of the most supportive card makers out there, and I had no idea you carried this heavy load in addition to all the work you put out daily in blogland/instagram. Praying you continue in your joyfulness~you inspire me! I have to get that color of purple now because it means so much more now!* HUGS *

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  17. Such a gorgeous card Sandie! Thank you so much for sharing your story with us! Thank God for friends and family who are always by our side! I am sending you all my love! It is such an exciting blog hop and I am so happy to be a part of it and spread such an important message.
    I am now your newest follower both here and on Instagram,
    xoxo Olga

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  18. Wonderful and thanks for sharing your story.
    slrdowney at hotmail dot com

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  19. Your story touches my heart Sandie and I'm so sorry to hear about your struggles with Epilepsy. How wonderful that you have a great support system and of course crafting, like you said, REALLY helps with so many things in every way! :) It's wonderful to have a great community of crafters to be apart of to help us all come together! (I'm a new follower!) Best wishes and hugs

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  20. My beautiful cousin - you are amazing. You know that how much I love and adore you and how proud I am of you for sharing your story. You are raising awareness for such an important cause. And of course, your card is perfect in every way! xoxo

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  21. Thanks for sharing your story and photo, a nice way to meet you :) It's a beautiful card! Very happy to share the hop with you.
    Annabel x

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  22. You are amazing for sharing this very personal story. I'm a big fan of yours and support you 100%! Love that picture of you and your card is great! I've shared this post on my blog too!

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  23. Your personal story, your involvement in raising awareness, your FABULOUS card and your generous giveaway speak volumes to what a treasure you are! You bring us joy in being 'you'...a gem in every way!
    hugs and love,
    ~c

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  24. Your card is so well designed and beautiful. I have family who suffer from epilepsy as well so I understand somewhat what it is like. Thankfully my family members take medication that helps them live a normal life. I hope that it is the same for you. Your photo is so lovely too. You are a beautiful young lady.

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  25. Thank you for sharing your story Sandie! So cute and pretty card, lovely design and adorable colour.
    Hugs, Valerija xx

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  26. You are so courageous, Sandie ... not only to deal with your severe epilepsy on a daily basis, but to share your story too ... what an inspiration and positive role model you are in our wonderful crafty community! Gorgeous 'you' card with that fabulous pop of purple ... and a beautiful photograph ... it's lovely to see you! Big hugs, Anita :)

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  27. Such a fun card! I appreciate you sharing your story. I have known several people with epilepsy. Thank you for sharing this informational and inspirational hop!!

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  28. Thanks for sharing. Quite a load you have to bear, but you inspire me with how you cope and smile.

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  29. What a stunning card and thanks for sharing your story!

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  30. Thanks for sharing your story and beautiful CAS card with the splash of purple. I'm glad to hear that you have a supportive family behind you and that crafting helps keep you engaged and in touch with other creative people. You seem to have worked out a schedule and approach that works for you, which is inspiring to me.

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  31. I'm so glad to read your story and learn some of what you have been dealing with and what a great way to help bring awareness to epilepsy. One of my dear friend's husband has it and I know having a loving and supportive family and friends can make all the difference in the world. I'm so happy that you have a good, strong support system and it's so impressive that you do all that you do! God Bless you Sandie!

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  32. Beautiful CAS card! And thank you for sharing your story... I had NO IDEA!I am so sorry you have to go through that!!! But glad you have crafting and crafty friends LIKE ME to help you! Anytime you need help with guest designing for Time Out or anything please reach out! So great of you to be a part of this awareness hop! I follow on Instagram! Thank you for the giveaway too!

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  33. Love this! Love your gorgeous purple card and love your bravery in sharing your story publicly.
    - Shauna

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  34. A really lovely post and even though my Sister has epilepsy it is no where near as disruptive to her life as it is to yours, she would not go on the medication for years then she had a really bad and embarrassing one so decided to go on the meds and thankfully far they are still working for her.
    Best wishes.

    Kath x

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  35. Thanks for sharing your sad story! You are a so strong and brave lady!
    Your CAS card is very impressive and beautiful, as you are! Blessing on your way!

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  36. Fabulous card, love it! How fab to see you rocking your purple clothes too! Gorgeous on both counts. Hugs, Wends xoxo

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  37. Meant to also say, thank you for sharing your story. That can't be easy to live with but how wonderful that you can have the joy of connections with the crafty world. They are such an uplifting bunch of humans! So no surprise you've found solace there. But also, so happy to hear it! Hugs, Wends xoxo

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  38. Great picture of you! Can't wait to meet you again! Your card sure makes me smile, although your story doesn't. I am so glad you have a wonderful supporting husband and you have us! :) Crafty friends are wonderful. Lastly I want to thank you for linking up this uplifting card on our new little challenge blog. So good to have you there! Big hugs, Cornelia (Btw - keep me out of the drawing, I already have so many Stamplorations stamps - make someone else happy)

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  39. You have my admiration for not only being such a great card maker but for hanging in there through some really tough times. Your card is uplifting and pretty in purple, and so are you.

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  40. I was glad to read your story, as I’m certain I didn’t stumble upon your blog (or this hop) by accident. I will pray for you and for healing of this debilitating disease. What an inspiration you are! Keep up the fight!

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  41. How lovely to see you in person, Sandie! That is a great photo! You look so pretty surrounded by your cards and that beautiful bouquet. Thank you for sharing it and for sharing your story. I wanted to mention you in my blog, but it was too late to ask your permission, so I didn't and now I'm pleased to see that you shared it here. We never know when we will inspire a stranger ... for sure you inspire me every day with your bravery and warrior spirit! I love you and I love your bold so-YOU purple card of happiness! Lots of hugs, Darnell (Give your hubby a big hug from me, too!)

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  42. Thanks for sharing your story! I am learning a lot on the hop! I don't have an Instagram account but will just pop in here and leave my note to support this hop! Love your pretty card!

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  43. Hello Sandie,
    Thanks to the blog hop, I came accross your site.
    It's the first time I hear about Purple Day, although my sister has epilepsy (she is 52 now - and mentally disabled).
    So sorry to hear your seizures are not under control anymore. Thank you for the courage to share your story.
    It's not easy and a life-time struggle.
    I'm glad there is an awareness day - as I said, I didn't know it, but I sure I will remember now, since March 26 is my birthday. I have to check if there is anything done in Belgium to raise the attention, and explain more about epilepsy on March 26.
    Btw your card is great, I love it !
    Take good care of yourself !
    Warm greetings from Belgium, Lieve

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  44. You are an inspiration Sandie! You give so much and in such difficult circumstances. It has been a pleasure meeting you across all these miles. Thank you for sharing your beautiful cards and heart with us!

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  45. So brave! Such an amazing thing to share your story and give hope and inspiration to so many who also have to cope like you with epilepsy. Delighted to see this card in the AAA Cards gallery, do come back and play again in our future challenges.

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  46. It takes so much courage to share your story to give hope and inspire others.You are one amazing and brave lady i have ever met Sandie.so Kind,sweet and always encouraging.

    such lovely pic of yours amongst all the beautiful cards..

    Love and lots of hugs
    Mugdha

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  47. Take care. Yes, crafters are the best people. Love your card. Hugz

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  48. A smile and your day will be happy. Today I give you my smile and thanks for this wonderful card. Thank you for showing this card at DotMCC.
    Have a happy day !!!
    I send you creative greetings and best wishes !!!
    Gundi

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  49. Sandie, thank you for sharing your story, and especially, for educating me on yet another cause of epilepsy.. I had no idea about the frequency within the population, nor the variety of causes. Wishing you a lovely day, hugs, de

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  50. I've hopped over from Kitty's KT Designs blog. Thank you for sharing your story. I also didn't know much about epilepsy. The crafting community is so caring.

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  51. Your strength and courage is inspiring. Sorry to read your seizures / lesions have worsened. Sending hugs and love your way. xx

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  52. WOW...you are one incredible lady and very inspiring too! Simply wonderful card.

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  53. What a great blog hop. People must know more about epilepsy. I wish I could leave a message on Instagram too for a chance to win your great gift, but I do not have an Instagram account. Good luck to all. Kisses.

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  54. Your card is lovely, and thank you for sharing your story and helping me (and others) understand more about epilepsy and how it impacts your life. As soon as I have a moment to craft, I will make something purple. And, I'm off to the hop.

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  55. Gorgeous card and love the large purple splat!!!So sorry to hear your health has worsened and epilepsy seems to be less mentioned then other serious health issues
    carol x

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  56. Very brave of you to share your story - so sorry you are going through this Journey as well as some of you family members - my dear grand-daughter lost her best friend who had a seizures - so I truly feel for you and your journey - thanks for being part of the hop and I am so happy to read you have support from your husband and family - blessings - may a cure come to help all in this journey

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  57. Thank you for sharing your story, you are a very inspirational woman! My youngest son has epilepsy, though for the moment it is under control with medication (fingers crossed and touch wood). I remember his first 6 years while we experimented with various medications and levels of medication trying to get the seizures under control like it was a bad dream. While the 8 years since then haven't been as awful, there have been times when he has had break through seizures due to outgrowing his medication or building up a resistance. And the drugs themselves have the side-effects too, causing tiredness and making it difficult to concentrate. He's a wonderful little guy though, always smiling and bringing sunshine to everyone around him! I'm immensely proud of him!

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  58. Darling friend. I wish I had the right words to say what I'm feeling. I guess I've always known that you've had health issues, but didn't want to pry. Chronic conditions are exhausting to live with, both physically and mentally and while I don't suffer the horrendous migraines on a daily basis, I can understand how epilepsy effects every aspect of your life. Not only do you have the courage and determination to face each day, you do it with grace and beauty, and might I add, a strong spirit. Thank you for sharing your story. You are an amazing soul. Sending you blessings. (And as an aside, your card is wonderful.) I will always be here if you need me. xo Bev

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  59. Such a bright, happy card, Sandie!
    Thank you so much for sharing your very touching story with us. You are an inspiration.
    Thanks for hopping along with us. It means a lot that you took time to join in.
    <3 J

    jwoolbright at gmail dot com
    HerPeacefulGarden.blogspot.com

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  60. Beautiful clean & simple card!!!!!

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  61. Hi Sandie, that CP purple is one of my absolute favourites and I just love your card! My heart breaks for you all the time because I can only imagine what you go through every single day. I just wish I could come across the pond and give you a great big hug! Love you lots girl and you look adorable in your purple outfit! 💜

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  62. Love your card and your super purple outfit. A very inspiring Post =^..^=
    Lovely to meet you on this Hop.

    Hugz
    IKE x

    My Challenge Blog
    My Shop
    My Blog
    FB Fan Page
    Cat Lovers Challenge Blog

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  63. Your card is beautiful. I lost a sister with epilepsy and not too many know what it can do to a persons life.

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  64. I am glad too you have lovely family
    I just read your story :((
    I dont know how to live with this sickness Sandie..
    hope we still be friend and I wish I can visiting you one day in your home there...
    big big hugs from me in Munich
    Monika
    PS: your card as always CAS and beautiful miss Sandie...great purple Splatter there...

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  65. Found you through Darnell, and so sorry to hear about your struggles. Thank goodness for this community of crafters that keep us all sane through life's full variety of trials and tribulations. I adore your CAS creation and will be checking out the rest of blog and challenge as soon as I click the publish button. Have hope!

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  66. Your card is so beautiful and spread smiles - I love its color and simplicity. Your story touches my heart Sandie and I am so sorry that you have to go through this! It's great to hear that your family and friends are so supportive!
    Thank you so much for linking up this beautiful card on our Day of the Month Card Club challenge blog.
    Take care and keep your joyfulness!
    Hugs, Rosi

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